Sunday, April 29, 2012

My Gluten Story


Diagnosing Mb. Chron's:

Google    ~   0.39 seconds.
DusanV   ~   39 minutes.
Doctors   ~   39 days.
This is the story about this diagnose.
About relationships between allergies, epilepsy, celiaky, Chron's, gluten and casein.

<< 8. Medicine or diet?

Despite the good progress, me and Natalija just couldn't understand why we can't get to zero seizures. Why are they still appearing. And we have realized that there won't be any quality answers from formal medicine shortly. Most of the threatment was about changing the dosis of medicine and checking the EEG.

My Gluten Story


Diagnosing Mb. Chron's:

Google    ~   0.39 seconds.
DusanV   ~   39 minutes.
Doctors   ~   39 days.
This is the story about this diagnose.
About relationships between allergies, epilepsy, celiaky, Chron's, gluten and casein.

<< 7. GFCF diet >>


Before this point in my life I have heard of celiaky once or twice. Gluten was almost an unkonow word, casein something I have never heard about. But according to many websites, citing scientific researches, a highly possible cause of seizures and epilepsy in children before 3 years are gluten and casein. Especially children with myoclonic seizures. And several other symptoms that very much looked like those of my son's.

Saturday, April 21, 2012

My Gluten Story


Diagnosing Mb. Chron's:

Google    ~   0.39 seconds.
DusanV   ~   39 minutes.
Doctors   ~   39 days.
This is the story about this diagnose.
About relationships between allergies, epilepsy, celiaky, Chron's, gluten and casein.

<< 6. Search for solutions >>


Within a few weeks, we became sure that Kepra is not helping. I was tracking data in details. I have noted every seizure - when it occured, how long it was and how "severe" it looked like. And I was noting every medicine level we gave to my son.

My Gluten Story


Diagnosing Mb. Chron's:

Google    ~   0.39 seconds.
DusanV   ~   39 minutes.
Doctors   ~   39 days.
This is the story about this diagnose.
About relationships between allergies, epilepsy, celiaky, Chron's, gluten and casein.

<< 5. Professionals first >>


Personally, I don't like to mess with other people's work. Even when I know they are doing it all wrong. Still, they might get lucky and do it right. But mostly because people that live for something, ussually know a lot more then me. And doctors ussually know really a lot more then I do about our bodies and what might be going on in there. So I trust trusted doctors much more than myself.

Especially after reading some things about the epilepsy and educating myself, I've noticed a lot of self-confidence in medicine. A lot of research was done in the field of epilepsy and for most children in western world, epilepsy is not a treat it used to be. First or second medication should make some effect already. Most grow up and don't need the medicine. Especially as in our case that no epilepsy case was known to anyone in the family.

There is one another important thing. I don't belive in "god", whoever that might be. Sorry, but I really belive in ourselves as humans, not in some higher force that will do things right. Therefore I do not belive you can walk into the church, light a candle and things will get better. No, I will go out there and find a solution. Fight. If god helps in the way, I don't mind. I just won't wait for "him".

So that is why for the first month and a half, we took the professionals advice. We live in quite a developed country and doctors seem experienced. We are not the only ones coping with this and we have seen worst cases in hospital. So surely we will win with doctors.

And they started like they do. With medicine. When we got our first bottle of Kepra, I was feeling a bit relaxed. I felt like this is about to change things quite quickly and within 14 days, we will be back to normal, taking medicines. Surely it is not really nice that your son has to take medicine from his 14 months onward, but if that is all he needs to be happy, so be it. He will take Kepra and perhaps in a a few years, he will be able to go without it.

(4. The epilepsy shock) <<
>> (6. Search for solutions)

Tuesday, November 15, 2011

Kako se znebiti "nategovalcev"?

Danes so me klicali iz studia Sigma. Vzorec pogovora je bil sledeč:

Slika iz spletne strani
podjetja Sorgo
[Ženski glas, poln navdiha] "Dober dan... vaše podjetje smo preučili in ugotovili, da ste zaupanja vredno podjetje...
[Pomembno: mobitel preklopim na zvočnik in ga odložim na mizo.]
... Kot takšno vas bomo objavili v mediju 1, mediju 2 in vam podelili poseben certifikat... Ste Dušan Vrban?"